This post is now available in the ‘Life with an Autistic Son’ ebook available to download from Amazon.
Rolo Cookies was my daughters must have. I would buy them for her before our arduous trip around Sainsbury’s which I only did once a week. If I forgot it, we went without! One day I realised that I’d forgotten my husband’s birthday! Horror of horrors but when you have 2 autistic children – birthdays get forgotten. I rushed into Sainsbury’s only to find my 3 year old girl missing. Next thing I knew she was being chased through our local shopping centre by the staff from Martins newsagents – Rolo’s clasped in her hand! Moral is ‘Don’t forget the sweet even if we go into the same shop three times in one day because that is what i am used to!’
Sounds all too familiar!
Totally the same here – the need for routine, as long as she has decided it…. We have a lovely farm park to visit near us, but it is almost right next to that lovely well-known chip shop. I made the mistake just once of going for chips afterwards, and from that day on there was no way we could visit the farm without also visiting the chip shop.
Something interesting our autism advisory person (don’t get excited, we see her once every year and a half if we’re lucky…) said recently is that our ASD girl views the world through other people, i.e. she doesn’t really understand herself or where she fits in. That obvs makes social interaction tricky and she does need to be taught all of that – just like your talking to the counter experience. Since diagnosis my eyes have been opened to how amazing it is that other children just learn all of this ‘stuff’ without actually ever being specifically taught it. They ‘fill in the gaps’ where ASD children just can’t.
Agreed. The ‘learnt’ rather than ‘intuitive’ way of understanding the world is a challenge that our children have to face. I am full of admiration for them when they do so.
We are currently having a number of ” mouth sensory” issues we are trying to understand with our 4yr old. on 2 occassions recently he has not opened his mouth for the whole afternoon following some as yet not understood issue at mealtimes. when in this mouth closed period he won’t speak, drink, eat etc. His mouth is firmly shut until something changes or distracts him and we are suddenly back to normal ( perhaps not the best choice of word!) . Reading a few articles the autism sensory issues do extend to the mouth and the sensations associated with it.
Have you seen this book? It’s quite good:
Some of this had me crying with laughter I’m afraid, having spent a similar day at a soft play centre yesterday. Other half got very excited that our son pointed at a packet of Organix crunchy sticks and proudly purchased our son’s healthy choice. I took one look and knew damn well he saw them and thought they look exactly like Wotsits. He took one bite spat it out and glared at the other half. “It is not yummy” he said, and stalked off to play. I love your blog.
Thanks! This little story made me smile today. It reminds me of a time when (not my) children spotted what they thought were chips in a restaurant’s hot buffet and piled them high. I can only imagine their faces when they tucked into them to find they were really roast parsnip slices!
I love your blog. This is our life.Thanks for writing I don’t feel so alone.
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