Some good news

We have cause to celebrate this week, albeit a rather odd thing to be celebrating. After a bit of a struggle, the Specialist Early Years Service have agreed to start the process of applying for a statement. That means we don’t have to apply ourselves and risk either mucking it up or looking like we don’t have the support of the agencies who have been involved in supporting B. It also means that SEYS are doing their job, listening to what they are being told and acting in my child’s best interests. Really it should not have been delayed as there is clearly a strong case, and need, for statemented support. Three years ago, if I’d been told we’d be applying for our son’s statement it would not have felt like something worth celebrating, but such is life.

So why the change of heart from SEYS? There were a couple of developments. Firstly, B’s key worker carried out two further observations. Unlike previous times, he was not having ‘a good day’. In fact, for him, he was having a normal day. Nursery were pleased that some of his usual, and difficult, behavioural patterns had been observed. Added to what we have been saying for a while now, I think that the full picture was becoming more apparent (or more difficult to ignore).

Secondly, we emailed SEYS and said, ‘if you don’t apply, we are going to.’ That’s not exactly what we said but is very close in tone to the first draft email I wrote. Thankfully, my wife stepped in and wrote a much more articulate, considered and convincing email. The next day we received a phone call confirming that the process had begun.

This is a good opportunity to thank everyone who has offered advice and support via forums. The general consensus overall was that the authorities are pretty useless (some used more colourful terms) and that we should take matters into our own hands. I’m really moved by the willingness of people to help, and to the response to this blog in general. Thanks everyone.

For the moment, the system is working for us, with a little prompting. I’ll need to learn more about the application process but it seems to me that we have made a step in the right direction in ensuring my son has the opportunity to make a successful start to his school life.

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This entry was posted in asd, aspergers, autism and tagged , , . Bookmark the permalink.

6 Responses to Some good news

  1. alexcparsons says:

    Well done! I am afraid it is still a long process. Your evidence is key and, although Michael was a bit older, we would be happy to share our 16 pages if you think it might help! A statement is probably a given; the key challenge is to ensure adequate provision of support is explicitly required by the Statement. Interpretation of these levels of provision is where cash strapped authorities will try to offer the minimum.

    • B's dad says:

      Thank you so much for your support. The kindness and support we have recently experienced via this blog and other forums has been amazing. It’s funny how this difficult, testing experience has helped us see the goodness in humanity out there! Really enjoying your blog. I will put a link to it on here, when I work out how to.

  2. discodad says:

    Hello
    I’m a dad in a similar situation a bit further down the road to you – I have a son with a statement. It took an appeal to SEND before my local authority backed down and agreed to assess. When they issued a weak, unspecified statement we had to appeal to SEND again, this time going all the way. We finally won fantastic provision for our son. I wish you well with the statementing process, but I think you need to be aware that some local authorities will stop at nothing to deny children the provision they need. Our case is by no means a one off. If your Local authority become aware of your blog, they could potentially try and use anything in it to either help them tactically or use it to try and discredit you in front of the tribunal panel, should it ever go that far. Our LA tried to smear our name – they had whole section in their response about ‘parental issues’ and thought nothing of lying on the day. Please be careful what you say, and do not weaken your hand for future battles

    • B's dad says:

      Definite food for thought there. Thank you for taking the time to reply, I shall take your advice on board. I’ve tried to be as discreet as possible on this blog. No one who knows me has been told about it other than my wife. I’d never really considered the possibility that what I write might be used against me! Once again, the support out there is excellent and welcome. Thanks.

  3. I’ve heard about blog content being used against parents and its shocks me a lot. This is one of the reasons why I feel forced to blog annonymously and not name the people or the school involved in my son’s poor treatment.

  4. Imms says:

    I have just started reading your blog and it has been very interesting. We and nursery have suspicions our son may have autism, reading your blogs it could have been our son that was been written about. He has a hospital appt coming soon and I am going to insist on an assessment. At his last appt the words were mentioned with a wait and see, he had grommets a few months ago and they were wanting to see if this helped things at all. It has and it hasn’t. Like yourself, I dont want to hear my child has autism, but if he has I want a diagnosis so that he (and us) can get the proper help to support him make the best of his life. Thanks for writing, I’ll be back for more soon.

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