Work/Life Balance

Work_Life_Balance

“Where do you see yourself in five year’s time?”

My headteacher stares inquisitively at me across his desk, waiting for my reply. It’s my annual subject review, and as a head of department in a secondary school, I am outlining my development plan for both my subject area and, it would seem, my future career. The Head has his Investors in People hat on and is doing what any good manager does and is nurturing and encouraging the progression and development of a member of his staff.

I wish he’d stop it.

I hate questions like this, for all sorts of reasons. Reason number one is that, since we first realised our son was autistic, any career aspirations I may have had took a back seat. In fact, they took the very back seat of the bus- the one where naughty kids who don’t like school sit.

Once upon a time I had been a very ambitious young man who quickly climbed the career ladder. Teaching is a pretty all-consuming job but I embraced it and was successful. Becoming a parent for the first time added pressure and difficulties to my work/life balance, as I’m sure is very common. However, in my case it actually made me a little more focussed. I made much better use of my time and energy as a result of having less of it. I was more efficient at work and ironically, it was probably the period when I was most effective as a teacher. In retrospect, I was also very happy with life, which probably reflected on how I felt about work.

And then it happened. Or rather, life gradually started to become quite challenging, less clear, more uncertain. My son was autistic, and this changed things. As we tore up the road map of our lives and set out on a less certain pathway, I found my priorities, beliefs and aspirations start to change. I don’t think I can underestimate the impact my son’s diagnosis had on my attitude to work. Suddenly, a lot of things that were previously important seemed utterly meaningless.

For months, my son was all I could think about at work, particularly during his first year of hospital appointments, assessments and MRI scans. I was distracted and I did not want to be there. The job that to such a large extent had defined the person I was became irrelevant. I coasted, put little effort in and got little out. I resented the hours I was spending with other people’s children and I resented the stupid hoops of exams and assessments that we make children jump through. In a very short space of time I had gone from contender to pretender. It simply didn’t matter any more. Obviously, earning a salary was pretty high on my list of priorities, as was doing a good job. But my heart was not in it. My mind was not on the job. How could it be, when my boy was autistic? How could anything matter again, now that this had happened?

Unsurprisingly, many parents of special needs children choose to stop working. Or rather, stop working for a salary. I can totally understand someone’s decision to do this. What job could possibly be more important than looking after your child? For some people we know, the level of care required takes away the element of choice. One couple we know had so many medical appointments in the space of one year that it would have been utterly impossible to consider trying to hold down a job, no matter how understanding the employer. My boss, the Headteacher, was very patient about my frequent absences for medical appointments. He might have been less understanding if he knew the extent to which I was coasting at work. The extent to which I simply did not want to be there.

Why am I sharing all this? Well, for one, I have wanted to write about it for a very long time. Until recently, when things began to improve a little, I struggled to find the words to explain how I felt. Also, I think there will be other people out there who feel this way. Most importantly, I have a positive message. Things are getting better and this improvement is something that is worth sharing, I think. I will never forget the dark days and months that we went through. I know some readers are there now. Maybe they feel the way I did about work and those other parts of their life that previously seemed so important. I hope that it will help them when I say, it’s okay to feel like that and it will get better.

I am also writing this to my wife. Much more than me she has felt the impact of our situation on her work life. She also works in education, and is a skilled and experienced practitioner. She finds her work rewarding and always goes the extra mile in delivering a good service to the young people she supports. But her career has been seriously compromised by the difficulties of raising our son. Before and after-school child care have proven impossible to provide for B, meaning his mum’s hours have had to drop considerably. Moreover, training opportunities and additional qualifications have become closed doors to her. As a result she is frustrated and no doubt feels guilty about whatever she does in her struggle to manage the catch 22 of work/life balance.

I hope that, in time, things will change for her.

With time, my attitude to work has begun to adjust. This coincides with life being easier in general, being better equipped to cope with a special needs child and, I guess, feeling a little happier. I’ve also been through a particularly intense period of various inspections that have forced me to focus more at work. This has been good for me, as I’ve felt the benefits and satisfaction of a job well done- something I’d almost forgotten about. I’ve been able to say to myself, ”I’m good at this. I’ve worked hard at it. I can’t just throw it all away. It means too much”. My job might not quite define me in the way it once did, but it’s still a huge part of who I am. And I’m lucky to have a job at all, let alone one that I love. I think I’m starting to get back my work/life balance, after a period of imbalance.

So who knows where I’ll be in five year’s time, but at least it’s looking a little less bleak than it did at the start of the (academic) year. I’m feeling optimistic.

If there’s a cloud on my silver lining, it’s the issue of my son’s future secondary school. In five year’s time B will be ten and, if mainstream is the right pathway for him, choosing his secondary school. This throws up a rather awkward problem for me. As things currently stand, B’s destination school would be the one I work in. Talk about a work/life balance clash! The obvious thing would be either to move house or go and work in another school. The latter seems a little extreme, but moving out of the area does not appeal either. By then B’s brother will have been at secondary school for two years and we’d like them to go to the same school. This means moving house in the next couple of years, which means getting our finger out and starting to make it happen very soon. We are not really in a position to make that move. It’s things like this that keep me awake at night!

There’s a part of me that wants B at my school. A part of me that wants to keep him close, so that when things go wrong, as they inevitably will, I am there to make sure he is okay.

A bigger part of me says it’s a recipe for disaster.

B is convinced that the students at my school call me Mr Daddy. He sees me as only having one job: being his dad. As time has progressed, I’ve started to find the balance and the ability to be more than just that, and to cope better with the demands of a career and fatherhood. But I will never, ever forget what is the most important job I will ever do.

And it’s not being a teacher.

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17 Responses to Work/Life Balance

  1. alesiablogs says:

    I feel your pain. As a retired RN, my career took every ounce of energy I could muster. Twenty years ago I had Luke who has severe autism. I worked up until he turned 18 and than had to quit because of a brain tumor. Life is not fair…But we must move forward. I am glad to see such good writing on wordpress. thank you.

  2. Great Blog entry as ever, we are currently trying to navigate the German Education system with two Autistic children ,
    Simon

  3. Rich B says:

    A very good post. Keep plugging away and a team approach certainly helps. I am very lucky that my wife has worked her way through all the referrals, chasing replies, chivying proffessionals and keeping at arms length intrusive/inappropriate inputs so i could focus on my job. You are right, it does get easier. I’ve just had a lovely day taking our 4 yr old with autism and his 9 yrs old brother out for a lovely walk and then a treat @ Burger King. He still gave us a busy night with a poo related episode in his bedroom though. Just about relaxed after a few glasses of wine and ready for tomorrow.It’s going to be a long journey.

  4. We are at the end of the road you are travelling. Louise was diagnosed with severe autism back in 1995 and didn’t talk until she was 5. I have worked in a series of jobs from Matalan to supporting carers and it was great to be out of the house (being at home and broke is a lot worse than working I found out) but awful when Louise was poorly. She developed Crohn’s age 13. I didn’t have a strong idea of what I wanted to be when I got married – a mum I suppose. Tom has worked all his life and missed out on the major upheavals, meltdowns, parent’s evenings and hospital appointments. Louise didn’t mainstream her secondary education – she was expelled from her local special school for being too autistic?!? She ended up at a ASD boarding school in Dorset. I don’t go out to work now and neither does Tom. Both of our children have ASD so we spend our time supporting them. Not glamorous but it has its rewards… Our Louise has an interview to study animation at Lincoln University! If I could have seen this when she was 5 – I wouldn’t have believed it. I write now about my experiences in a fictionalised form. I don’t regret working, it paid for our holidays which the children really loved and for the trips to the cinema, play centres etc but I wish I’d had more sympathetic employers (the worst were our local council) and been able to stay longer than a few months x

  5. stepfielding says:

    Thank you very much for this one – I look forward to all your posts. Work life/ balance can be extremely hard to find. I have recently left my job of 10 years because I had had enough of the lack of support from my manager over issues like be expected to stay behind late for no pay and working extra hours at the drop of a hat. This week I have started a new job, again part time and have already been told it would be nice if I could work more days in the school holidays. I am dreading that conversation where I have to explain that my parents, whilst being totally amazing, at 70+ cannot physically manage my 6 1/2 yr old for more than a couple of 7 hour stretches a week. It’s hard to convince someone that you are 100 % committed to a job and being good at that job but ONLY FOR those 20 hrs a week. I too wonder if there will ever be a time that I will be able to get those qualifications/ promotions. Good luck and please keep writing.

  6. Shanell says:

    I used to be a contender too :( . Daughter diagnosed 8 months ago and I am a special needs/resource teacher (which is another post) and currently in the pretender phase. Working extremely hard to be a contender again. This might be my aboriginal post EVER! Thanks

  7. Liz says:

    I just wanted to write and say how much I love your blog. I have three children and my oldest son has High Functioning Autisum. My youngest son has a rare genetic condition and we think he may also be on the spectrum. Life in our house is loud and mad and you never seem to ever get five minutes. Before I had my children I worked full time and had such a passion and desire to excel and achieve I always wanted to be the best at I what I did. Now I work part time and for me the dreams and job have come and gone. I spend a few hours a week getting paid for cleaning. It’s all I can manage now because we have so many medical appointments. I’m also fighting for my youngest child to be statemented and with the revolving door policy that seems to take place at his school. I never seem to have much time left. I put so much time into taking care of the children that I often wonder what happened to the old me. I’m now on an exciting journey of up’s and down’s with my children who I love dearly. Maybe one day I will find my back to my career and be able to manage both work and home life but for now I’m needed at home.

    Keep up the good work on your blog. It often makes me smile and laugh.

    Thank you.

    • B's Dad says:

      Thank you. After saying things were looking up at work, I’m now off with Manflu and feeling pretty rotten! Your kind comments have cheered me up! You sound like a good mum- your children are lucky x

  8. swanbythelakeside says:

    fantastic post. I have a 10 year old with ASD, and he is GREAT! Also two others…But it has taken a lot out of me (only beginning to realise this, as he was only diagnosed at 8 and I felt there was nothing wrong with him for a long time) and I am relieved not to be in paid employment atm. Tbh, life with ASD makes you doubt your professional skills in a strange eroding sort of way, as if somehow, somewhere you botched something or are botching something.
    But I try not to think like that, and am just grateful at the moment not to be worrying about job as well as children. When I work outside home (mostly voluntary these days) I get this strange feeling that I am a different person than I am with son, not just A’s mum. And I think it makes me better at BEING A’s Mum to be someone else, occasionally. I am seeing ASD in fiction all the time now. Mr Darcy is a clearcut case…

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