The Music Lesson

“After silence, that which comes nearest to expressing the inexpressible is music.”
-Aldous  Huxley

For as long as I can remember, my son has had a fascination with music. Whether it’s his CDs, his dancing, his ‘beatbox’ stim or even his recent habit of making up little songs, it’s always been there.

At times, this has been problematic. B’s ‘special interest’ in CDs (or crazed obsession as I call it) has seen him destroy a good many CDs in the house. Usually it is my CDs he destroys, although I gave up on being precious about them some time ago. It’s more difficult when we’re at someone else’s house. On holiday recently our hearts sank as we realised our beautiful holiday cottage had a bundle of CDs for our bundle of joy to scratch his way through.

Getting him past the entertainment section in supermarkets is a master class in route planning and deft aisle avoidance. And B’s ‘ human beatbox’ stim draws its fair share of stares out in public. He’s like a one man Public Enemy, in every sense of the word. He will also, without warning, break into a dance routine if he hears music he likes, regardless of where we are. His dancing is best described as ‘unique’, but I’ll give him credit- he puts his heart and soul into it. He recently gave me the slip in a shop, and when I tracked him down he was busting a move to a small gathering of amused (or is that bemused) on-lookers. Wouldn’t you love to be that un-self conscious?

Recently, B has taken to sitting and tapping out little, repetitive motifs and melodies on a keyboard or such like. Nothing elaborate, just four or five notes in a little, rhythmic pattern. He is able to remember these little tunes he’s made up, and return to them days later. Most significantly, he can spend up to fifteen minutes engaged in these activities. That’s a long time for my attention-free son.

Autism may be genetic, but musical ability almost certainly is not, if you ask me. Try as I might, I am unable to see where this natural affinity for music comes from. Not my wife (tone deaf), not me (despite my hopeless efforts to learn guitar in recent years) and not anyone else in the immediate family. Perhaps his love of music is inherited from me, if not his musical ability. I buy all sorts of CDs (and records, and downloads) and it’s never long before B gets his hands on them and begins to soak up the sounds, song names and (always) song lengths. Then he goes into school, keen to tell his T.A. about ‘his’ new CD of African Funk or something equally bizarre.

We decided to act upon this interest, and seek out someone who could offer music therapy sessions. I’ve read a little about the positive effects of music therapy and autistic children. A useful blog post came my way this week. It explained how, “Some of the most exciting developments in our field recently have involved music therapy and autism.  Music therapy is a great fit with autism for a variety of reasons: Music encourages social interactions, is adaptable to people of all abilities, is multi-modal and engages us across multiple domains (motor, communication, cognitive, etc.), provides opportunities for success and is FUN and motivating!

This sounded good to me, although you’d be surprised just how difficult it is to get hold of a music therapist in my area. We tried every avenue we could think of: school, the local authority, Autism Outreach, extensive web searches and much more. We posted on Twitter, Mumsnet and Facebook, but to no avail. If you are a music therapist in my particular part of the West Midlands, then stop hiding- you could be making a killing. Eventually, I stumbled upon an idea that was so blindingly obvious that I felt utterly stupid for not thinking of it earlier. Why not just call a standard music tutor and ask if they could offer anything? Two phone calls later and I had found a tutor interested in working with B. Her name is Karen and she teaches keyboard. Her experience with special needs children is not extensive, but she seemed clued up on the phone, asked the right questions and was happy to give it a go.

We’re under no illusions that our son is some sort of musical prodigy. I don’t expect him, aged five (and a ‘young’ five at that) to suddenly learn a musical instrument. There are no autism miracles, and this is not about that. But it might be an outlet for his energy. It might be a way of developing his communication skills, as he works with a new adult and it might become something he looks forward to. Most of all, it might be fun.

And so it was that we found ourselves outside Karen’s house on Wednesday evening. B had the usual effect on people he meets, in that the music teacher was utterly charmed by his angelic looks and sunny disposition. From the moment B greeted her with an excited, affectionate, “Hello Karen!”, like an old friend, he had won her over.

“What’s your name?” she asked.

He gave his full name, the first part of which can be abbreviated.

“And what does your mummy call you?”

“Beautiful”

As we laughed about it later, my wife breathed a sigh of relief that he hadn’t said, “a pain in the arse”, or worse. Talking of which, one of his little songs recently had the simple, (half) rhyming refrain “I’m not a pain, I’m just the same.” He sang it all weekend, breaking our hearts every time he did so. Where does this come from? Does he know what he’s doing? Does he know how profoundly moving and spot-on and perceptive his words are?

The lesson itself was pretty much what I expected, though not necessarily what Karen expected. She made the (understandable) mistake that ‘normal rules apply’ as she started the lesson. It quickly became apparent to her that they did not. For pretty much the entire half hour, B bounced off the walls, barely able to sit still for more than a few moments. It was a stark reminder of how challenging B can be, and how adept we are at handling those challenges, particularly compared to a person new to B. Having said that, even with my intervention, we were unable to focus him on a particular activity for more than a few seconds.

Part of the problem was that the room was awash with intriguing keyboard equipment, laptops and other paraphernalia. He was, in retrospect, overwhelmed with choices, and must have thought all his birthdays had come at once with all those buttons to press. Usually, a computer is enough to completely distract his attention, without help from something that looks like it’s come out of a spaceship. B didn’t want any help from Karen whatsoever as he explored the keyboards. He didn’t want to be taught, he wanted to see if ‘Marimba’ sounded better than ‘Pizzicato Strings.’ Try as she might, B didn’t want to know where to position his fingers , or the difference between black keys and white keys.

I felt a little guilty for forgetting to mention a few important details about my son. Over the phone, I’d talked about his condition, his needs and his abilities. We’d discussed what we’d like to get out of the sessions and what the difficulties might be. I thought I’d prepared her. What I’d forgotten we’re things like, ‘don’t sing to him’. B hates anyone singing and will scream at them to stop. This is manageable enough when you’re sat in the car, less so when you’re trying to give a child a lesson in music. I’d also forgotten how physical he can be and how unaware of personal boundaries he is. Consequently, he shouted, “Be quiet” as he pushed the music teacher’s hand away from the keyboard and, at one point, into her face.

The wonderful thing about B is that, even when being a horror, he seems to exert a charm over people which makes them forgive him. Still, I genuinely felt that I should pay up more than the eleven pounds she charged for her half hour session. It probably felt like more than half an hour to her.

Karen was very patient, although some of her questions were very telling: “Do you find you need endless patience with him?” (yes) and, ”Does he have loads of support at school?” (every second of the day). Rather embarrassingly, she had to ask him to say “please” several times during the lesson (which he did). I forget how often the social niceties get dropped in our house. Quite frankly, we’re glad if he co-operates without a fuss and does what he’s told. We can live without ‘please’, although we should try harder with him. Good manners cost nothing, as they say. Unless the cost is a screaming meltdown caused by being forced to do something against your will.

So, was it an unmitigated disaster? Well, no, actually, it was not. We got the first three notes of ‘Three Blind Mice’ out of him, and he gave the drum machine a full three minutes of his attention. And of course he had a whale of a time. He’s talked about it since and is looking forward to going back. I think it’s important to keep these things in perspective: it was his first lesson, everything was new, he was excited and Karen had just had a crash course in Autism for Beginners.

Despite the problems, I think Karen saw something in him. His innate sense of rhythm was obvious, as was his fiercely inquisitive, intelligent mind. As he bashed away at the keys (a little too hard for my liking) she asked, “Does this song have words?”. “No”, he replied, “it’s an instrumental”. I got the impression she really wants to be able to get through to him, and not just because I’m paying her. She was actually very good with him, and he liked her. As I was leaving, she said, “I will make it work.” It’s a grand claim, but I love that she said it, whatever the outcome.

Whatever the future holds for my son, I hope his music will continue to be a part of it, and bring him joy. And if these music sessions stop bringing that joy, then we’ll simply stop them. But perhaps they will become a bridge into his world. Perhaps one day his music will be something he wants others to be a part of and enjoy as a shared experience. That’s a bridge worth building.

“Who hears music feels his solitude peopled at once.”
 -Robert Browning

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22 Responses to The Music Lesson

  1. stepfielding says:

    Thanks so much for these postings. I have been looking forward to these for the past month or so. Oddly enough my son also hates anyone singing which isn’t good when his younger sister loves to sing. You feel very much torn between encouraging her creativity and confidence without distressing him overly.When he got his placement at the local Autism Teaching Unit we told them “no singing!” and thankfully they ignored us and he has music and singing almost every day since. It was a very great moment to be able to sing Happy Birthday to him for the first time on his 6th birthday and hearing him start to sing songs to us has been wonderful. I do occasionally wonder though if his dislike stems more from a true gift of musical appreciation – does he meltdown because the rest of us are so untuneful we are committing a crime against music? :-)

    • B's Dad says:

      My son insisted no one sing Happy Birthday this year too. Banners and balloons were also banned for reasons known only to himself! None of which stopped him having a great time! Thanks for your comment; I’m glad you enjoy the posts.

  2. johnculkin says:

    Fascinating post, I really hope it helps him. Music is such an individual, expressive thing, a unique way of communicating – its wired in to us, and the wiring seems to be a circuit all of its own. Theres an amazing clip of the effect here – an old guy with dementia being totally changed by music http://m.youtube.com/watch?v=NKDXuCE7LeQ&desktop_uri=%2Fwatch%3Fv%3DNKDXuCE7LeQ&gl=GB

    Good luck and keep going with the guitar too!

  3. stephstwogirls says:

    Tee hee, I like Stepfieldings comment about the crime – I’m also shouted at to stop singing in the car (I can’t help it though, the words come out naturally!), and when most recently I asked why I’m not allowed (it’s taken 5 years to be able to question her), the answer is ‘it is not good’. We considered music therapy (local council run them, £30 per session though!) for our girl when she was 3-4, as she also seems to have a natural talent, but at the end of the day we never got around to starting it as we figured there was no way she would sit and do what a teacher says (that still applies, mostly). Back then it was unlikely we could have ever got her in the car to go to a place that she hadn’t seen before.
    B does sound like he has real ability though, and I really hope Karen can bring it out of him – like you said, the fact she is willing to try is the best starting point. I’m sure you won’t give up, however embarrassing he gets (wait til he’s comfortable there and starts stripping off ;) ).

    • B's Dad says:

      Well, my wife’s taking him this week, so stripping is fine! Having said that, she might not be taking him after she reads this post. I did ‘sugar the pill’ somewhat when describing his first lesson to her…

  4. rossmountney says:

    Such an inspirational blog. Wanted to send very best wishes to you and your family. x

  5. Al says:

    Aw I loved this post. My son has always loved music and dancing but developed a real phobia about music linked with him starting school. Fortunately, after listening to the same CD for a whole year I kid you not, his enjoyment of music seems to have returned and it’s fab to hear him pottering about the house singing. Your post has given me lots to think about. I love what your music teacher said too, it’s difficult but she’s not going to give up. I’m never giving up either.

  6. Nicola says:

    Reading your blog is like reading about the trials and tribulations that go on in our life (autistic 7 yr old, ‘normal’ functioning 9 and 10 yr old) Oh, how we laugh, if we didn’t we’d probably cry! Thanks for sharing. N

  7. Have you investigated AIT for your son? Auditory Integration Training can sometimes help those children with ASD as they may have a sensory auditory problem e.g. some frequencies override others and some pitches can actually be painful for them. My son had AIT when he was 6 yrs old. Prior to that, aeroplane toilets, hand dryers and the school bell would cause him to freak out and put his hands over his ears. His second auditory test, after the treatment, was quite different to the first and the level at which he heard each frequency was far more normal than before. He was hearing very high pitched noise louder than any other beforehand. Cheers, Fiona.

  8. Being a huge admirer of Aldous Huxley’s works, you had me at the start here. Sometimes you stumble across blogs, and you offer such wise words and humour for the future that I find myself becoming a ‘follower’ instantly… How close that is to stalker I’m yet to clarify! Our little boy is just about to turm two, and in amongst his myriad of medical charms the scales are beginning to drop from our eyes and understand him as if not autistic (too early to say apparently, development delays overall not defining him yet), but at least within the elite. I write about the beginning of our journey at areyoukiddingney.wordpress.com.

  9. Zoë says:

    I read this and flashed back to my boy when he was little and fascinated with anything electrical. So similar to what you have described! No one knows what hard work it is, or the pain of knowing this child is different and will always be different, but they also have no idea of the consequent joy when a child with autism learns something new, or finds something that makes him happy. I remember my beautiful, cheeky, irrespressible, unreachable boy. He’s changed so much now at 12, and the journey has been totally unpredictable and quite amazing.

    Thank you for this post. It is a very good attempt at explaining the unexplainable! :-)

  10. Zoë says:

    Reblogged this on Just Zoë, Just Life and commented:
    I am reblogging this because we are so busy with packing and preparing to move house.

    This post so resonated with me, and describes so well this little boy’s personality and behaviour, and the effect his disability has on his world, positive and negative, and on his family. It was like reading about HRH when he was small. I think unless you have SEN kids you can never really know what it is like, but this post details a single hour, out of a very long day, extremely well.

  11. Nikki Parsons says:

    So uncanny. So much like my son. I’ve not read many blogs where the children are high functioning and very verbal as is my son. My son HATES anyone singing which is hard cos I sing without even realising it. I’d love to find out more about ur dx for your son as I’m worried about my son starting full time school. At the moment he goes to a nursery where someone shadows him all day due to his unpredictable behaviour with the other children but I know this wont be possible at school. He is under a child Psyc, an Ed psych, a paediatrician and a sleep clinic. He was under OT but I’ve managed to get his sensory issues under control now. Nobody want to dx as they say he is too young but if he goes to school with no extra help I know he will just be sent home every day. The nursery think the same as me but nobody will listen :-(

  12. B's Dad says:

    Hi Nikki,
    Like you, we were very anxious for our son to get the dx (because it was obvious he eventually would) and, following that, a statutory assessment. Like you, we met opposition and reluctance. But you don’t need a dx to get a statement. We forced the issue by telling our support agencies we were going to make a parental request for a stat assesssment, if they wouldn’t. In the end we got 32.5 hours of support for B. Parent Partnership were pretty useful throughout this.
    I really hope things work out for you and your boy. It’s not easy, is it?
    As things progress, you might find my ‘supporting comments’ page useful for statementing. Also, check out the Special Needs Jungle blog for a link to a useful publication posted today.
    All the best. Stay strong.

  13. Fiona says:

    I found this fascinating. I’ve been both a Music teacher and a SENCo and considered training as a music therapist when I was at university. Brilliant to hear that Karen was so up for the experience and so enthusiastic about finding an appropriate way of working with your boy. I really believe that music can make a difference and reach kids in a way that sometimes other approaches can’t. Would love to hear more of this story – has B’s interest in music continued?

  14. Nicole says:

    Hi there, thank you very much for notifying me of your blog. As you know I’m doing a research project on how music therapy can help autistic children. Your blog has given me a parents view of how life is and the daily challenges. Would you object to me quoting your blog and offering a link to this page in my project?

    Nicole

  15. B's Dad says:

    Nicole,
    I’d be happy for you to use the blog in any way you wish. Could you keep me updated with the project as it progresses?
    Thanks.

  16. Nicole says:

    Yes I will keep you updated with how the project is going. Im not sure how close you are to Birmingham, but there is a centre there that has an arts therapy outreach programme that can do home sessions. http://www.bcat.info/index.asp
    You may have already heard of them, but they may be able to offer B music therapy sessions if you would rather. Thank you for all your help. Your blog is really insightful.

  17. First of all I would like to say terrific blog! I had a quick question in which
    I’d like to ask if you do not mind. I was interested to find out how you center yourself and clear your mind before writing. I have had a tough time clearing my thoughts in getting my ideas out there. I do take pleasure in writing however it just seems like the first 10 to 15 minutes are generally wasted just trying to figure out how to begin. Any ideas or tips? Appreciate it!

    • B's Dad says:

      Thank you for the kind words. Before I sit down to write a post, I already have my topic, three or four key points and, quite often, my first sentence. I will have been thinking about it during the week so that I have a starting point. Without that, I’d probably waste time. I usually have limited time to write, so I have to have a head start. After the first few lines I tend to just find inspiration and the rest just comes to me. I rarely know how I’m going to end a post until I get there. I never re-draft or return to edit a post because I don’t have the time. Hope that helps. Hey, I feel like a real writer! Thanks!

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