As we approach the last couple of weeks of my son’s first school year, I thought I’d reflect on how it’s gone. We’ll be doing this formally next week, in his annual review. Hot on the heels of the previous week’s ‘toilet’ meeting (see The Battle of Water/Loo) we’ll once again be squeezing into the Head’s office, along with the Senco, class teacher, Speech and Language Therapist, Autism Outreach, Parent Partnership and Occupational Therapist. Add my wife and I and that makes nine adults in a tiny room. He’s only got five chairs. Perhaps we could sit on each other’s laps, according to our allegiances. Obviously my wife would sit on my lap, OT and SALT I think would make a nice pair. The Head could cosy up with the class teacher and I’m sure AO and PP would get along fine. The Senco would have to sit on her own though. She’s quite scary.
Despite this opportunity to review B’s progress, and look ahead, I thought I’d do some reflection of my own. I’m not sure whether I’m reviewing my son’s progress, the school, his support network or myself, but here goes.
The most obvious starting point is to ask the question, ‘Was mainstream the right choice?’ Strictly speaking, we didn’t have a choice, as B’s statement came a little too late in the process to change his starting point for September. Nonetheless, we could have, at any point, raised the issue of a move to a special school if we’d felt it necessary. On balance, I would say that sending him to mainstream school was the right choice. When my wife reads this, I know she will feel less certain. Academically, B is very able, given the right circumstances and opportunities. Just as you can’t train a fish to climb a tree, there are certain aspects of the curriculum and school life that B is not cut out for. Put him in the right conditions though, and he won’t just stay afloat, he’ll excel (ironically, he can’t swim a stroke, but you get the idea).
The trouble is, all too often B has been swimming against the tide at mainstream school. I doubt that a special school would be the right place for him, but equally he is an awkward fit into the mainstream classroom. Never is this more apparent than when we attend class assemblies or other similar events. The school’s policy is to invite parents to rewards assemblies and your child’s class assembly, which occur with alarming regularity. These are a tense experience for us as parents. Usually my wife tackles them on her own, but I’ve managed to make one or two (usually more as moral support for my wife than anything else). Out trot the Reception class onto the stage, followed by (always last) our son, with his T.A. glued to his side. It’s immediately apparent who “the boy who needs help” is. There then follows a very tense twenty minutes or so as we pray that B will make it to the end. Usually, he does not. It might be the song he doesn’t like, the audience, or any number of triggers, but often he has to be taken out. Up stands his T.A., who escorts him kicking, screaming and shouting in front of everyone, back to his class or wherever it is that they take him to calm down. Look everyone! That’s my child who can’t cope with sitting for twenty minutes in a hall full of his peers!
You’ll understand why we were dreading Sport’s Day. I still shudder at the very thought, even though I wasn’t there. When I did attend a couple of years ago, for my oldest son, I was struck by the intense competitive nature of the parents, zealously egging on their children to win. They’re just reception class for fuck’s sake, I thought, until I realised I was doing exactly the same when it was my son’s turn (for the record, my oldest son has an unbeaten record of three winning year’s in a row). B though, is a different matter. How would he cope, in front of everyone, in a competitive race? Would he even make it to the end? Would his T.A. run alongside him? Would the assembled crowd of parents laugh or, even worse, let out a collect ‘ahhhh’ of sympathy that would cut right through my wife? Should he even be doing Sport’s Day? As is often the case, these dreads and fears were all about us as parents, and nothing to do with my son, who was perfectly happy.
By my wife’s account, it wasn’t too bad, although I think she sugared the pill for me somewhat. When it was B’s turn to race, his T.A. sat alongside him on the starting line, insistently drilling into him the instruction to, “Run to the end. Don’t stop. Don’t wave to Mummy. Keep going.” Well, he certainly did what he was told. Bless my little boy- he ran all the way to the end. His awkward gait meant he was never going to win and predictably he was last, but he did it nonetheless. The trouble is, no one had thought to tell him what to do when he got to the end. Can you guess what happened? My boy kept running, shouting out “I did it!” as he completed another lap before running into the arms of his mum for a very public celebration of his achievement. It was a real Forrest Gump moment, but one we’re very proud of. B was able to ‘compete’ in Sport’s Day, albeit with his own unique twist. Still, we’re very proud of his achievement, even if it means more to us than it does to him.
If Sport’s Day was a (relative) high, there have been more than enough lows. As we reach the end of the year, there seems to have been an escalation in difficult and challenging behaviour by B. My wife said last week that every single day brought with it a new issue, and she was not exaggerating. In an amazing run of disruptiveness, he managed to strip off in the playground, smacked his T.A. (again. The woman deserves a medal), thumped a crying child, ate the sand-pit (or as much as he could manage to get in his mouth over the period of a week) and generally had an escalation in his unwillingness to participate and do what’s expected of him. Oh, and he pulled down the dinner lady’s top and tried to blow a raspberry on her chest. He has an uncanny knack of doing this just ahead of review meetings!
No wonder that, in B’s home/school book the teacher is writing such comments as, “very stroppy and defiant”, “struggled to follow routines and rules” and “major tantrum today.”
And yet, for all these setbacks, I think the forthcoming meeting will be full of positives. No one is going to pretend it hasn’t been a difficult year. There will certainly be plenty of concerns to discuss. But my review of his first year in mainstream school would be have to conclude that on balance, there have been more highs than lows. No, really!
Join me next week, when I’ll be sharing some of those highs.





Everything you write is near identical to our experience of mainstream school except we are just approaching the end of year1 but we are still clinging on to mainstream as we as parents think it is still the right place for our son (although I’m not sure school or other professionals agree!)
I think it’s one of the hardest choices, but if you can make mainstream work and get the right support to help then eventually it will hopefully pay off. It also can be a valuable way of informing and educating others about difference and the need for acceptance. – I wonder with the assemblies etc. whether they cld have a programme where B is enabled to sit for part of the assembly and is then taken out as part of the ‘show’ at a planned point with dignity rather than leaving it until he has had enough, that way they might be able to avoid the public spectacle that does no-one any good. May be over time they could gradually extend the time he participates. – Don’t know if that would help, but it might be something to think about. Also i was going to let you know how we helped my Son with the toilet issue – we had very similar issues when he was at nursery and the solution we found was totally unique. It wasn’t in any book or would never have been suggested by a professional and may just have have worked for him. If you want to DM me your email I’ll let you know – didn’t want to splash (excuse the pun) it all over the internet.
yes yes yes. Again, so much I relate to! All of it except the thumping really (sorry, bonus of having a girl) – and I don’t think she’s pulled down Cook’s top, but then I’m not sure our school would tell me. They refuse to write anything negative in the home/school book – not sure if that’s better or worse than yours!
Assemblies are exactly as you describe – tense, buttock clenching, mostly un-enjoyable experiences (every week or us, though we’re not forced to attend). Our girl has swung from not getting further than the door, to full on joining in class songs and dances (!) to back to general refusals and having to sit on the TA’s knee. Yes she sticks out like a sore thumb. For me though, as long as she’s happy (I use the term loosely) to go back into school every day, it’s got to be the right place! Good luck with the outnumbered meeting – had those too. Sent my OH on his own to one this week, so there’s a warning to be nice to your wife
I often read your blog as working with autistic adults who have missed out, because diagnosis was exttrmely late in developement, i’m curious to see if todays children will fare better in the future. And, I do feel teachers are still very unaware of how to deal with autistic behaviour. All our local schools now have adjoined autistic units with specialist care and a lot of knowledge, time for rest to catch up. Its a shame B does not have these facilities as you get the mainstream needed without the ‘rules and routine’ demanded from mainstream pupils
Hi,
My daughter is in a mainstream school and also the youngest in year 5 which doesn’t help seeing as though she is way behind the others anyway. It still seems the best thing for her at the moment.
Just wanted to share my experiences of sports day, in her younger years I let her participate like all the other children but with that worry something could go wrong and her confidence dented. Then in year 3 she competed in the egg and spoon race, which when I think of it now is a combination of things she finds difficult. As soon as they started it was clear she couldn’t compete. After a few paces she dropped the “egg” and could not scoop it back up again but continued to try as cheating wasn’t an option. She was still trying when the children were coming back up toward the finish line. There was a looong period of the whole field realising what was happening and I just wanted to run on and save her but I was frozen and in tears. Amazingly but also cringe-inducingly the rest of the children who had long finished started chanting her name in support as she stumbled on at a snail pace. It was obvious by now she wasn’t going to do it and the SENCO ran on and scooped up the egg and ran towards the finish line with my girl and everyone cheered.
As it turns out she was fairly unphased by the experience but as time has gone on she has become more embarrassed by her differences and I’ve come to the conclusion that although excluding her from such competitive races sets her aside from the other children it does not highlight her differences as much as actually participating. Even if she forgets about it, older children will not. Thankfully, we had a couple of year’s sports days rained off. Otherwise I’ve asked them to let her help out and for them to exclude her from anything that will weed out her difficulties in this way which they have been happy to oblige. She is much more content with this too x
I often forget in day to day life, the value in the saying that you cannot train a fish to climb a tree. I need to remember it more.
My son, too was in a mainstream class for his kindergarten. He excelled academically. The social parts were, for the most part, lost on him although he had his participating moments. And like you, next week we will have our IEP. I enjoyed your seating configuration. I have similar ideas but thankfully we will have enough chairs.
My son is a big fan of sand too…it made for some very interesting nappies when he was younger. On the plus side, he was never constipated.
Am I VERY juvenile that I’m laughing my arse off about the dinner lady?
XXX