Parents’ Evening

When your son’s teacher says, “I think you’d better book two consecutive parent’s evening slots instead of one…”, the signs are not good. I wanted to say, “No, we’re fine with fifteen minutes, thanks” but of course, she’s right. Half an hour is barely going to scratch the surface, let alone half that time. The usual quick run through of progress made, areas for improvement and levels achieved might suit most children, but normal rules rarely apply where B is concerned. And so it was that we headed off to his parent teacher consultation, heavy of heart and bracing ourselves for who knows what.

We have a history of uncomfortable parent’s evenings. I still shudder at the thought of the evening when my oldest son’s teacher (incorrectly) told me she thought he was on the spectrum. I remember the anti-climax of the year before when we were told he was making decent enough progress but perhaps wasn’t the child prodigy that we hoped and thought he was (he’s gone on to prove we were more right than we thought). And then there’s the numerous other meetings we’ve had with school- all well documented on the pages of this blog, and all a difficult experience in one way or another.

I’m very used to, and quite comfortable with, sitting on the other side of the table at parents’ evenings. The vast majority of meetings are a positive and worthwhile experience. You get the occasional tricky customer or pain in the arse who can’t see things for what they are, but generally the sense that we’re all on the same side and want the best for the child sets the tone of the chat. Where it becomes difficult is when a child is either really struggling or has (usually as a result of struggling) poor behaviour. That’s when, as teachers, we reach for the euphemisms. “I don’t think it’s his strongest subject”, “He enjoys more active learning”, or “he’s quite a character” are usually code for what in the staff room would be “nightmare”, “bonkers” or “little shit”. I’d like to think that as a teacher I am honest and realistic when talking to parents. Nonetheless, I think we all play the same game of sugaring the pill.

As a result, my ears are quite attuned to ‘teacher speak’ at parent’s evening. I’ve heard all the coded phrases because I’ve used them myself. I know when I’m not hearing straight talking and I know how to read between the lines. When my oldest son’s teacher said he gets distracted, I knew that meant he was distracting. I want to say to teacher’s, “It’s okay. No need for the BS. You can give it to me straight”.

Funnily enough, I didn’t quite feel like that this time. If anything, I wanted to say, “Be gentle with us”. As rhino-thick as my skin is, I felt decidedly anxious ahead of this meeting, and I know my wife did too. It’s funny how a brief event or meeting can become the pivotal, all-consuming focal point of your week. The long, slow build up to Thursday evening gave us ample time to become wound up about chatting to B’s teacher. And so we did what we always do ahead of stressful meetings like this: we made a list.

I have included here the questions we wrote in the hope/illusion that we might some day be of use/interest to someone:

  • How well is he accessing the curriculum?
  • What are his main difficulties and issues?
  • What issues should we raise with occupational therapy?
  • How is his attention and concentration?
  • How is he (and the school) coping with toileting?
  • How does he respond to the rest of the class?
  • How do the rest of the class respond to him?
  • To what extent will he be included in Sports Day and other forthcoming school events?
  • What are his National Curriculum levels?
  • How does school foresee him coping with Year One?
  • How is his SALT intervention going?
  • How is he getting on with his T.A?
  • How much ‘time out’ and exclusion from the class is happening?

As always happens, we pretty much forgot about the list of questions once we were there. B’s teacher had a list of things she wanted to share and these took up the majority of the meeting. Most, but not all of the questions were addressed anyway and we covered plenty in our appointment (which, at 40 minutes, overran).

As a teacher, I always approach meetings with an emphasis on the positive elements of the child’s progress. It’s too easy to get bogged down with what a child can’t do at the expense of celebrating their achievements. That is not to say that areas for improvement are shied away from, but they are a part of the meeting rather than the over-riding tone. And so it was with B’s teacher. She was very happy to report all sorts of progress and development. Problems had been overcome, skills improved and success enjoyed. She was able to share examples of positive progress and improvements. Despite difficulties and a reluctance to go in some mornings, she felt he was settled, happy and doing well. She told us things that, as parents, we wanted to hear. She went as far as to say, “I wish you could be a fly on the wall to see how well he’s doing.” Undoubtably, they are pleased with how thing’s are developing and feel we should be pleased too. We nodded and smiled our way through the meeting, acknowledging his success and gratefully receiving such positive feedback. We thanked the school for their hard work and left what had, overall, been a much better experience than we had expected.

With a little distance, and time to reflect, our feelings about the meeting are that it was very positive. But that is not how we felt. B’s teacher could never know how the things she told us would make us feel. Why wouldn’t we feel delighted and encouraged by such positive comments? The truth is that the meeting reminded us, in no uncertain terms, that our son is different.

The harsh reality is that we are autism parents. Our son might be doing well, but it is on very different terms from his peers. The meeting shone a spotlight on my son’s differences, highlighting just how far removed he is from the norm. We did not talk about National Curriculum levels, as if such things are irrelevant or out of reach for my son. We were told things like, “he almost knows the other children’s’ names” and “last week, he played with someone”. We were told, “the class is very accepting of difference” and “he joins in most activities”, like these things are supposed to fill us with joy.

Well they don’t. They just rub our faces in the fact that our son, whilst mainstream, sticks out like a sore thumb. Even in this most basic of years, when play is everything and the demands so much more simple, he needs every minute of those 32.5 hours support to cope. Foolishly, we took a sneaky look at his class mates’ books while we were waiting. I wish we hadn’t. We also saw a photograph of the class, smiling for the camera. There he is, right on the end, looking in a completely different direction. This tells you everything you need to know.

It was not meant to be like this. My children were supposed to be the ones who sailed through school, with the advantage of a supportive and educated family ensuring that they would always do well. They were at least supposed to be achieving typical levels for their age. I wish we were even talking about levels. I gave my wife the usual  positive bullshit (“stay strong”, “be tough”, “it will get easier”) while all the time I’m dying inside. I found myself thinking the thoughts that, until now, I have always managed to avoid: it’s not fucking fair.

I’ll stop there. This is not a healthy way to think and I’m writing under the cloud of this week’s meeting, which will soon enough lift. It has to; on Thursday we are back in school for B’s six month review.

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10 Responses to Parents’ Evening

  1. momshieb says:

    I want to respond to your post, so well written and touching. But I sort of feel as if I don’t have the right. I am a speech/language pathologist as well as a fifth grade teacher. I have been the overly cheerful voice on the other side of that table many times, as I know you have.
    I’m also the mother of three typical children. Because I have known both roles, I count my blessings every single day. I wish that there were some magical answers for you and for your son. I wish that there was a script for teachers in this situation.
    Perhaps there are gifts and blessings unseen yet for all of you. They won’t take away the pain of your reality, but maybe they are out there for you. I truly hope so.

  2. I have to admit to gettig watery eyes reading this. Then I had to wait 10 mins and let it digest before replying. This is SO how I feel, it’s like you’ve read my mind and expressed it perfectly. Especially seeing as we have parents eve coming up next week – I made and crossed out 3 different appointments, wondering whether there was any point in getting one my husband could come to (but he can’t daytimes unless with lots of notice and we don’t have childcare for an evening). In the end I just thought, oh well, what can they really tell me in 10 minutes anyway – that’s all we get! We do have a statement review coming up too, so I guess I can save the questions for that, although that feels like a much more formal and structured meeting. I would so love to be having a ‘normal’ parents evening, with those ‘normal’ worries. Hope your mood lifts soon and the rollercoaster goes back up…
    Would you mind if I share your blog post on my blog and facebook pages?

  3. farmwifetwo says:

    I no longer go to them for the younger. It’s very obvious they cannot answer the questions you listed nor are they interested. The special ed report card is a regurgitation of the IEP. No more, no less and like ABA it has to be perfect or no ability to move forward so months are lost to introduce new things. Yet, he has a teacher that does her best and does truly care. A classroom he enjoys, doing well in and learning. But, in the end it’s still respite.

    Dh has agreed to pull him at Gr 6 – one more year – after today’s conversation I’m going to ask him in a few days whether or not I can write that letter to pull him now. A year ago he would have said “never”… I appreciate he’s been thinking about it. Usually he has an opinion but no “say”. I’d like him to have a say and be on side with this.

  4. LonelyPath says:

    I’ve been reading your blog for a while – you started it up around the time we began to suspect our son, too, was autistic. We’re a bit behind you (our son is younger) and it has been helpful to read of your experiences as a kind of preparation for when we get there. Our paths aren’t exactly the same, of course – the other day I described it as if we’re walking an unknown path through the woods, and occasionally catch a glimpse of you ahead or off to the side. It’s just good to know we’re not alone.

    Anyway, I wanted to comment to say that I cried a little, reading this, as I recognise the emotions you describe. It’s one of the hardest things to ever describe or talk about to other people, this anger, this sadness. Others assume it means you see your child in a negative light, but it doesn’t necessarily mean that. It’s more about you, not them. It’s just part of the experience, because quite frankly, sometimes life really isn’t fair, not at all.

    I just wanted you to know that I understand: I’m there lost in the woods too.

  5. Virginia says:

    What you wrote hit home for me, just not in the school setting. Alvin is still in a developmental preschool class where he is with other kids like him. Next year we are pushing him to be mainstreamed into kindergarten and I know things like this will come up. The meetings with the teacher where you talk about how well he is doing yet you know how far off he actually is in the skills or activities.

    I do however see these things and also get angry at his gymnastics classes. He is mainstreamed and while all the parents of typical kids sit back and relax I’m always on guard. Socially he is about 2.5 and he physically turns 5 this month. He has made great progress but at times I leave crying. It wasn’t supposed to be like this. He wasn’t supposed to have difficulty communicating or socializing like this.

    I know how you feel and honestly it sounds like you guys are coping great and your blog is a wonderful way to get out your frustrations regarding your son.

  6. B's Dad says:

    Thanks everyone. I hesitated before posting this week but I’m glad I did now. We should never ever forget we are not alone in the things we are going through. Your kind words mean a lot to me.

  7. Richmond says:

    Interesting and well written as usual. So much of what you say sums up how I feel. My DS a bit behind yours as due to start reception this september and was disagnosed with ASD 6 months ago (although he is non verbal). After a lot of heartache we have decided to take him out of his pre-prep which is a lovely school but they have never had an autistic child and its just not geared to him. He is plainly not going to follow his two sisters to top ten schools. About to get our draft statement through and we are going to name an asd unit which is attached to a state school. Have no experience of the state system so its going to be all change for him and us, but I was kidding myself thinking that he could cope in mainstream and as soon as we went into this unit we knew it was suited to his needs. Perhaps that will change and he will enter mainstream in the future but I anticipate that parents’ evenings for us will continue to be a difficult occasion for years to come.

  8. Loved reading this,and definately recognised some of the feelings you have . For me parents evening for my 9yr old has always had that feeling of dread. Inappropriate behaviour, answers back,cheeky, rude , disrespectful were all words used to describe him. So the school to me has always labelled him as a naughty boy. Only 3 months ago have we had the diagnosis of HF autism, and to me this is such a positive thing. Only now do i feel i can face these meetings without getting upset , and can ask of the school what they are doing to support him and the stratagies used to lessen any potential difficulties .
    Maxine

  9. I dreaded every Parent-Teacher Conference as it’s called here when my 14 1/2 year old Aspie daughter was growing up. She was a holy terror, but she is brilliant! She was treated for ADHD from age 6 until age 13 1/2 when she was finally diagnosed with Asperger’s Syndrome in October 2011. Her 4 year old fraternal twin brothers were diagnosed at the Marcus Autism Center in Atlanta, Georgia (USA), one with PDD-NOS and the other with moderate/severe classic Autism in May and June 2010. Her diagnosis explained so much of her behavior problems in primary school. It’s a year later and I still feel horrible for not knowing sooner. It just wasn’t diagnosed as often back then. When I told her past teachers about her Asperger’s, they all nod and say “wow…that makes sense. that explains an awful lot”. If I had known then, I could have gotten OT for her sensory issues and social deficits. She finally has a couple good friends. Ironically, one of her best friends also has Asperger’s as well as Bipolar Disorder. You know the saying “birds of a feather flock together”….it is as I said before “ironic” that her friends are like her. But I am happy she has someone to share her feelings and problems with….even if it is a boy :)

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